The Metabolic Research Team
The Metabolic Research Team is based out of Calgary, Alberta. The team consists of two research coordinators, a research nurse, a research assistant, an administrative assistant, research and facilitation clerks and graduate students.
After working in research for over 10 years, Dr. Khan recognized the need for a different approach to the early diagnosis of rare genetic and metabolic diseases in Calgary. Driven by the desire to see a more innovative and faster process for patient screening, Dr. Khan saw an opportunity to open a private research facility geared towards advancing the diagnostics of rare genetic and inherited metabolic disorders. In January 2016, he opened the Metabolics And Genetics In Calgary (M.A.G.I.C.) Clinic which functions as Dr. Khan's off-site research office, where his team conducts study procedures and recruitment from research protocols from the University of Calgary.
M.A.G.I.C. Clinic is in no way affiliated with the University of Calgary or Alberta Health Services.
Lysosomal Disease Support Network
Who we are
Dr. Khan received his MD from Queen's University in Kingston, ON in 1997. Upon graduation, he completed 3 years of paediatric residency at the RUSH Children's Hospital in Chicago. He then completed his 4th year of residency at the Hospital for Sick Children in Toronto in 2001. From there, he went on to become a Fellow of the Canadian College of Medical Geneticists in 2003. In 2006, he was appointed as an Assistant Professor of Medical Genetics and Paediatrics at the University of Calgary, Alberta Children's Hospital. In 2015, he became Associate Professor of Medical Genetics and Paediatrics. He has been a full member of the Alberta Children's Hospital Research Institute since 2010.
Dr. Khan's Research:
The area of research is focused on rare and inherited metabolic and genetic disorders. He is a pediatrician and medical geneticist, specializing in inborn errors of metabolism. His practice is 70% clinical and 30% research. His research is focused on interventions in patients with rare diseases. He has a special interest in interventional therapies, mitochondrial diseases, lysosomal storage diseases, bone diseases, and cardiomyopathies.
Shelly Jelinski, CCRP
Shelly Jelinski is a Certified Clinical Research Professional with 19 years of experience conducting and monitoring drug and device clinical trials. She came to the Metabolic Research Team with proficiency in multiple modalities. Shelly currently is responsible for several complex rare disease clinical trials bridging Phase I to Phase IV. Shelly functions as a leader, administrator, coordinator, consultant, educator and researcher with in-depth knowledge of global regulatory requirements, data collection, monitoring, case management of protocol participants, recruitment, enrolment and protection of participants. Shelly is an integral memeber of the Metabolic Research Team as a coordinator and a communicator between the many affiliates associated with various clinical trials.
Connie Mohan, CCRP
Connie Mohan is a Certified Clinical Research Professional with 21 years of experience conducting clinical trials as well as drug and disease registries. She came to the Metabolic Team with vast experience in audit preparation and handling complicated trials across an array of the therapeutic areas. Connie currently manages a wide variety of sponsor and investigator driven research studies including obtaining Research Ethics Board approval, initiation, recruitment, enrolment, retention, and close-out. She is responsible for coordinating several complex rare disease registries and clinical trials, specifically cinical data collection, data cleaning, data editing, and data matching to ensure compliance with study protocol. Connie is an important member of the Metabolic Research Team as a coordinator liaising between the many affiliates associated with various clinical trials, research projects and registries.
Sheila McNaughton, RN
As a Research Nurse, Sheila provides support to patients and other members of the Metabolic Research Team. She conducts and oversees technical procedures and assists Dr. Khan with patient monitoring.
Desmond Koo, BHSc, MBT
Desmond is a Clinical Research Assistant tasked with providing support to the rest of the research team members. He is also the lead coordinator in a number of trials involving rare neuromuscular disorders, lysosomal storage diseases, and mitochondrial diseases. Desmond also supports MAGIC Clinic’s business and administrative operations.
As the Research Administrative Assistant, Kelsey is responsible for ensuring staff have the resources and supplies they need to complete their jobs such as record keeping and ordering medical supplies. Kelsey is also responsible for the finances and funding received for Dr. Khan's clinical trial sponsors. She is responsible for the set-up and administration of Dr. Khan's research accounts.
As a Data Entry and Booking Clerk, Shelley prides herself on her organizational skills with attention to detail. She enters research study information in our multiple databases which requires a high degree of accuracy, while solving problems and prioritizing tasks. Patients have always come first and scheduling them is a definite priority. Shelley is very proud to be a part of the Metabolic Research Team, which she supports in every way she can.
Fadya is a Health Information Specialist, responsible for completing drug renewal applications for Alberta Health, Alberta Blue Cross and the Short Term Exceptional Drug Therapy (STEDT) program and assisting in the processing of upcoming renewals.